Ben just walked up the sidewalk of his home in Colorado after giving me a hug and a huge smile. He is content. . During this Thanksgiving season, I am SO grateful for the path that brought us here. To find exactly what Ben needs to live a productive life at this stage of his recovery is a miracle. I praise God who never leaves us alone to fight or suffer. He had the miracle planned even when all I could see was darkness.
The weather in Colorado was warm and beautiful this weekend. Ben and I shopped and went to restaurants. We took drives with the music turned up. Saturday we spent time getting Ben's malfunctioning computer up and running. I put a few finishing touches on his room. But even with all the joy, this is not a fairy tale with a storybook ending.
Ben still has significant deficits is memory, self awareness and behaviors. He knows he can't remember things and it saddens and frustrates him. Even instructions that he understands at the time they are given are forgotten in the blink of an eye. He carries a small notebook everywhere to write down as many cues as possible. Because of memory and problems with complex thinking, Ben can not plan. He knows what he wants to do, but can't figure out how to get there. Please pray for complete healing of Ben's mind. He is young and still has potential for lots of improvement. Nothing is impossible for God.
Ben is spending time with God. He reads his devotional and prays daily. I believe this time with God has seeded the joy I see on Ben's face. Even though the problems are there, Ben seems more "whole" to me than previous visits. I know God is working and it will be for good.
"But You, O Lord are a shield for me, my glory, and the lifter of my head" Psalm 3:3
The purpose of this blog is to show how faith, my professional training and a healthy sense of humor taught me and continues to teach me that Jesus Christ is always in control. I am a fellow learner as this journey for my child unfolds. My wish is that Ben's legacy gives others hope where there seems to be none. It is also my desire that the information I have assimilated with my medical mind and filtered through a mother's heart gives practical ways to deal with this ever-changing chronic disease. Finally, for the many friends and family members who continue to follow Ben's life change after the injury, the story continues.