Hello friends. Much has happened since my last update. Ben's progress in recovery has improved in several ways, but Jim and I have been faced with many challenges in obtaining good care for him over the last few weeks. First , the medication plan initiated at the Touchstone neurorecovery center seems to be working. Ben is less sedated, more verbal, and happier. His gait is much steadier, needing little support when out of the wheelchair. Jim and i were able to take him on his first car trip outing; lunch at Sonic and a short shopping trip to Academy. Ben's comments,"It's fun. It's radiant, you know? I get to go to Sonic and order from the regular menu. I feel anticipated about that!". He followed up with, "Do we need gas yet? I'll put gas in the tank because my dad deserves it."
The purpose of this blog is to show how faith, my professional training and a healthy sense of humor taught me and continues to teach me that Jesus Christ is always in control. I am a fellow learner as this journey for my child unfolds. My wish is that Ben's legacy gives others hope where there seems to be none. It is also my desire that the information I have assimilated with my medical mind and filtered through a mother's heart gives practical ways to deal with this ever-changing chronic disease. Finally, for the many friends and family members who continue to follow Ben's life change after the injury, the story continues.
Tuesday, April 9, 2013
Hello everyone. Thanks for continuing to follow Ben's updates. In the past few weeks Ben has had several medication adjustments. We are starting to see improved behaviors. We are starting to see Ben's joy return. It isn't as often as I would like, but better. I have had to step back recently to count the blessings that we have TODAY instead of continually striving for tomorrow.