Last weekend, I traveled to Colorado to see Ben. Jim and I try to visit at least once a month. Medically, Ben has had a few set backs. Behaviors surface occasionally that need care, intervention and sometimes medication adjustments. He had just come out of a period of struggle and things were much better. I have learned through this journey with Ben that God will provide the road, the answers and peace. The director of the home where Ben lives honestly likes him. She feels his sense of humor and personality add much to lives of the other people in the home. She feels like Ben is worth it. This may sound sad, but Jim and I have been fighting this battle for Ben alone for so long, to have someone fighting along side of us is such a relief and a blessing. And....of course God is on our side. Jim and I no longer panic when the wheels seem to fall off the wagon. Either God will fix the wheels or we find out that the wagon rolls just fine without wheels.
The purpose of this blog is to show how faith, my professional training and a healthy sense of humor taught me and continues to teach me that Jesus Christ is always in control. I am a fellow learner as this journey for my child unfolds. My wish is that Ben's legacy gives others hope where there seems to be none. It is also my desire that the information I have assimilated with my medical mind and filtered through a mother's heart gives practical ways to deal with this ever-changing chronic disease. Finally, for the many friends and family members who continue to follow Ben's life change after the injury, the story continues.