Jim made the drive to see Ben early this morning. The reports this week have been encouraging. Apparently Ben is only rarely using his wheelchair to move about the new recovery center. He is walking everywhere.....all day. That really makes me smile! I hate that wheelchair. With all the physical exertion, Ben is going to bed very early each night and sleeping well. The therapists and staff are working on behaviors and personal care as well as many other cognitive problems. What I love is how
The purpose of this blog is to show how faith, my professional training and a healthy sense of humor taught me and continues to teach me that Jesus Christ is always in control. I am a fellow learner as this journey for my child unfolds. My wish is that Ben's legacy gives others hope where there seems to be none. It is also my desire that the information I have assimilated with my medical mind and filtered through a mother's heart gives practical ways to deal with this ever-changing chronic disease. Finally, for the many friends and family members who continue to follow Ben's life change after the injury, the story continues.
Wednesday, May 22, 2013
I arrived at the hospital to pick up Ben very early Monday morning. It was a new beginning, a new day. The van from the new neurorecovery center was waiting. Ben and I climbed into the back seat behind the driver and attendant and began the long drive ahead of us. It was a miracle that Ben had even been approved by insurance for the treatment center. Ben's new neuropsychologist said the exact words the Humana doctor needed to hear in order to give Ben this chance.
Thursday, May 16, 2013
Wednesday, May 15, 2013
Tomorrow is the anniversary of Ben's injury. One year ago I couldn't even imagine dealing with the list of medical, physical and psychological problems common in young men who survive a life threatening traumatic brain injury. Believe it or not, I would have been excited if someone could have told me the problems that Ben would be dealing with today. In May of last year Jim and I knew that the chance of Ben surviving the accident was small. The chance of a functional outcome was slim. Today, the list of problems that Ben faces each day can be extremely frustrating. It is long, with many victories and setbacks each and every day. Ben still remembers little about the accident. He has not cleared "post traumatic amnesia" which is not a great prognostic sign.
Sunday, May 12, 2013
Hello everyone. Todays update on Benjamin is full of victories and challenges. Benjamin moved from Touchstone Neurorecovery Center on 4/23/2013. The decision to move him at that time had to do with insurance coverage. Jim and I tried to admit Ben to a different facility for care and recovery. This facility didn't work out. After 2 days, we picked Ben up with few options. For the last 2 weeks, we have hit road block after road block looking for the right choice for rehabilitative care. I know that the answer is coming soon. God has been directing this from the beginning. For some reason Ben needed to be out of Touchstone. something better is on the horizon.