It has been over a month since my last post. I have been waiting for a moment of respite in Ben's story before bringing everyone up to date on his journey. There has been little respite, however. So begins my post.... with the good and the bad. Ben has been in Colorado for a little over a month. Ben moved into a place designated as a home environment with a day programs on site for young adult traumatic brain injury (TBI) patients. Although there are cuts to therapeutic living environments for TBI patients everywhere, Colorado is better than Texas. The option seemed perfect and was definitely an answer to prayer.
The purpose of this blog is to show how faith, my professional training and a healthy sense of humor taught me and continues to teach me that Jesus Christ is always in control. I am a fellow learner as this journey for my child unfolds. My wish is that Ben's legacy gives others hope where there seems to be none. It is also my desire that the information I have assimilated with my medical mind and filtered through a mother's heart gives practical ways to deal with this ever-changing chronic disease. Finally, for the many friends and family members who continue to follow Ben's life change after the injury, the story continues.
Saturday, March 8, 2014
Saturday, February 1, 2014
The journey continues in Ben's road to recovery. I am so appreciative of everyone that takes the time to follow Ben's progress. Ben was discharged from the Pate Neurorecovery Center in Anna, TX on January 17th. Jim and I, after exhaustive research, decided that there were limited venues for living and recovery for Ben in Texas. Ben relocated to a living facility in Colorado that offered opportunity for the next step in supporting Ben in his progress toward independence. It is a homelike facility with younger people, specifically geared toward traumatic brain injury. Jim and I were very hopeful that this could be the next step for Ben. He was tired of living in a controlled therapeutic environment and was ready to move toward preparing for school or work. Colorado seemed to have the answers we were looking for after hitting road block after road block to anything even remotely appropriate in Texas.
Saturday, January 4, 2014
We hope and pray that the new year is full of healing and hope as Ben moves into the 19th month since his traumatic brain injury. Ben continues to work hard in the therapeutic program at the neurorecovery center. Although he is able to do many things well, Ben's significant memory, behavioral and anxiety problems are a barrier to him living independently. Jim and I are currently being faced with struggles for appropriate care as the January discharge date from the neurorecovery draws closer. Ben was able to come home for Christmas. He had not returned home since the injury. It was a joyful time with many bittersweet moments. Ben wanted to stay home. He isn't ready.
Tuesday, December 3, 2013
Sunday, November 17, 2013
Ben continues to live and learn at the neurorecovery center. Jim visited him this weekend. He and Ben went to the movies and enjoyed dinner at a local restaurant. Chicken fried steak has become Ben's favorite meal. Today staff members from the neurorecovery center took Ben to church. Our cousin, Elizabeth, then took Ben to lunch and to the park. Ben sent pictures from his iPad taken at the park. he is "clowning" around. It is a beautiful day. There is pure joy written all over his face.
Friday, October 25, 2013
Wednesday, October 23, 2013
I visited Ben this last weekend. He is remembering more and more. With the new freedom allowed with his day passes from the recovery center, Ben's world continues to expand. He LOVES being around people. Attending church, going to restaurants and driving through the city are all new adventures. After a church service Ben said that he was filled with "joy in this place'. I often think of all the prayer requests over the last year asking for the joy that is manifesting before my eyes. The church that has take an interest in Ben took video footage of him last weekend as part of the pastor's sermon series on faith. What an honor! My prayer has always been that this story would be for good, to bring others to hope and faith in God.
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